Wednesday, June 26, 2013

2 Pounds and Continuing!

He did it!  Despite all the tummy trouble he has had since his last GI appointment 3 months ago, Bryce still gained 2 pounds!  Woo Who!


I was a little worried, but he pulled it off.  Dr. McOmber was pleased with that.  He gave me a hard time about the Green love, in a joking way throughout the entire appointment.  He also said that he had just talked to someone who had come in about the fact that I feed Bryce a green smoothie through his tube and how it has helped with his constipation and gotten him off of MiraLax.  We are becoming known around that office and other people are joining in!  It is so nice that he has come around to totally being okay with us doing a blended diet for Bryce.  It is hard to deny the facts of the benefits of eating real food when you see results like Bryce's right in front of your eyes!  Keep it up Bryce.  You are doing great things here!  Dr. McOmber really is a fantastic doctor and the appointment couldn't have gone better.

Last time we were in, Dr. M mentioned doing some blood work to be sure Bryce was getting all of the nutrients that he needs through his new blended diet.  He didn't mention it this time, so I brought it up.  I would just like to make sure Bryce is not lacking anywhere.  If he is, then we will know that and I can just adjust his feeds a bit and make sure he is getting everything he needs.  I love being able to do that!

Bryce showing off his nifty green bandage.

Bryce did a fantastic job with getting his blood drawn today.  No crying at all!  He was not happy about having to get it done, but he made it through without any tears.  I was so proud of my big boy.

Appointments like today's make me feel like all the extra work/money I am putting into feeding Bryce the right way, for him, is really worth it.  Sometimes it's just nice to have a little reminder of that.

Our busy day continued once we got home.  Bryce's one-on-one Para from last year came by to say hello.  She was here for about 4 and a half hours.  It was so good to see her again.  She has really been missing Mr. Bryce.  We found out on the last day of school that, by no choice of her own, she will not be returning to the school next year.  They told her that her job has been cut.  Her job was being Bryce's one-on-one Para.  Doesn't make any sense why that position would be cut.  He still very much needs a one-on-one person with him throughout the school day, not to mention it is in his IEP, not to mention they have a notice from Dr. N making it very clear that he is to have a one-on-one aide at all times.  I learned a little more today.  Unfortunately, some of my suspicions have been confirmed.  Looks like I will be making a call/visit to the school once the office staff is back from Summer break.  Leslie is a fantastic person and the new little girl  that she will be working with this next year is very lucky.  This story will be continued for sure!

I love this picture of them together! 

Ms. Leslie and Bryce.  Both happy to see each other again!

While Leslie was here, Bryce and Annalise had speech therapy.  Today, Miss Laura brought a cute hand flag craft to do with them.




It still amazes me that we are able to do this with Bryce.  Just months ago, even seeing the bottles of paint would have made him gag.  There is no way that we would have been able to put it on his hands! 


Maisey and Eliza, my nieces were over when we were working on the crafts, so they got in on the action.  

The projects turned out really cute!  While all of this was going on, the older boys had cousins and friends over.  We had 11 kids here total most of the afternoon!  Fun times!  Converting our garage into an area for the boys and their friends was one of the best things we have done in years.  Hopefully we will be able to finish the therapy room soon.