"I'm baaack!"

So today was one of the most tiring, frustrating days that I have had in a long time. However, somewhere between the early wake-up, the toilet flowing over, the multiple wet sheets (by one child), the clean kitchen floor suddenly covered in something sticky (which of course nobody knows anything about), the phone call telling me that my husband would be out of town all next week as well, the therapies, appointments, and hour long session with Bryce's case manager where I had to explain over and over again the fact that no, Bryce is not going to get better, No, he is not going to be able to eat by mouth, walk, talk, etc. again (yes, even if we set a goal for that), yes, it really does take over an hour to get him (just him) ready for the day,  and everything else that happened today, something really cool happened.   After Annalise's useless appointment at CRS this afternoon, we walked across the street to visit the staff at  The Ryan House and to pick something up from there that we had left during our last visit.  Annalise was in her walker and as we went through the front doors, she looked around and suddenly threw her arms up in the air and said loud and clear, "I'm baaack!"  (She is 2.  Where does she come up with these things?)  She then proceeded to walk right in and all around the place like she owned it. It was so funny.  I wish I had had a video camera.  There were two staff members there who we have worked with before who had just come up to welcome us.  The one said that this had to be the best entrance she had ever seen.

The other cool thing was that while we were at Ryan House, we got to meet Ryan, yes, THE Ryan of the Ryan House.  He is a really sweet 10 year old boy with SMA.  He was in a wheelchair and instantly began playing and racing with Annalise.  Him in his chair and her running in her walker beside him.  He would then race up to her like he was going to run into her and stop just in time.  She laughed and laughed.  SO CUTE!  It was like they were instant friends.  There really is something special about these kids!  I didn't get any pictures, so hopefully we will get to meet Ryan again some day.  I did sign us up for a couple more visits for later this year though.  I LOVE that place!